Contact information

Kaddy Thomas Elijah's Hope CIC

CEO/Director
Clevedon
North Somerset
BS21 6QN
United Kingdom

Contact information

Postal Address

41 Churchill Avenue
Clevedon
North Somerset
BS21 6QN
United Kingdom

E-Mail Address

kaddy@elijahs-hope.org

Telephone

01275 269259

Biography

I’m Kaddy Thomas, founder of Elijah’s Hope, a community interest company (CIC) that aims to provide information and support to families who are living with Apert Syndrome in the UK and internationally.

Both my 11-year-old son, Elijah, and I have Apert Syndrome, a rare genetic disorder characterised by the premature fusion of certain skull bones (craniosynostosis) and fusion of a varied number of fingers and toes (syndactyly). Elijah also has complex care needs, including postural care, as the result of a brain injury caused by a post-surgical infection when he was 18 months old.

I work with families, health care professionals, and multiple rare disease forums, as well as managing Elijah’s Personalised Health Budget, which means that I have a unique perspective as a parent, a postural care advocate, package manager, and founder of a CIC.

I am a leading voice for the importance of 24-hour postural care to prevent body shape distortion in people with limited movement or complex disabilities; a preventative approach can potentially save the NHS tens of thousands of pounds each year, as well as safeguarding lives. In 2015, I hosted Elijah’s First International Conference: The Living University of Postural Care, which brought together postural care experts from across the globe to share best practice. A second conference is planned for later this year.

I am available for public speaking and keynote presentations, as well as to provide expert opinions about Apert Syndrome, postural care and night-time positioning, and Personal Health Budgets to the media. I am a passionate, thought-provoking and engaging speaker who will cast new light on many of the issues above.
 

Presentation of competencies

 
Developing positive attitudes and values towards adult learners with disabilities

Attitude towards adult learners with disabilities

The expert understands the importance of inclusion and participation of people with disabilities and demonstrates positive values and attitudes.

Expectations from adult learners with disabilities

The expert has a positive attitude towards the abilities of people and is experienced in strategies which support people to reach their potential.

Attitude of other learners

The expert is skilled in methods which promote positive attitude and values among the learners.

Adult learners with disabilities advocacy

The expert is able to support organisations in developing an inclusive model of education.

Building partnerships

The expert is familiar with and able to share information of local and national organisations promoting rights of learners with disabilities.
 
Providing an accessible environment for learning

Accessibility review

The expert is able to test the physical environment on its accessibility and work with an organisation to develop strategies to improve and evaluate it.

Professional Assistance

The expert is able to support organisations in developing internal resources and competencies on accessibility and locating other experts.
 
Planning accessible learning

Planning learning and assessment

The expert is experienced in person-centred support planning and able to train teaching staff to ensure flexible learning.

Recognising prior learning and experience

The expert can train staff on how to recognise prior learning and experiences of learners with disabilities and how to include them in future learning goals.

Adaptative learning provision

The expert is experienced in alternative learning methods and technologies to support the individual needs and interests of learners with and without disabilities.
 
Supporting accessible learning

Self-directed learning

The expert can assist organizations in promoting and independently in their training offers and training.

Personal assistance

The expert can advise the organisation about the possibilities of internal/external personal assistance. They may signpost to qualified and experienced personal assistants.

Staff expertise on adult learners with disabilities

The expert is able to advise staff on needs of learners with different disabilities and offer training in meeting their needs.

Continuing Professional Development

The expert can train or knows further education for staff regarding accessible education of learners with disabilities.

Staff Induction

The expert is able to advise organisations on developing plans to induct its staff on accessibility.
 
Communicating and public relations

Communication with adult learners with disabilities

The expert is able to train staff on methods and tools for an appropriate and positive communication with learners with disabilities.

Informing on the learning provision

The expert is able to support the organisation in the provision of accessible information and offer training.

Informing on the accessibility of the learning provision

The expert is able to support the organisation in providing information on the accessibility of their course offerings in their public relation material.

Promoting the learning provision

The expert knows strategies und methods to promote inclusive courses and trainings by addressing learners with and without disabilities.

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