Kaddy Thomas Elijah's Hope CIC
I’m Kaddy Thomas, founder of Elijah’s Hope, a community interest company (CIC) that aims to provide information and support to families who are living with Apert Syndrome in the UK and internationally.
Both my 11-year-old son, Elijah, and I have Apert Syndrome, a rare genetic disorder characterised by the premature fusion of certain skull bones (craniosynostosis) and fusion of a varied number of fingers and toes (syndactyly). Elijah also has complex care needs, including postural care, as the result of a brain injury caused by a post-surgical infection when he was 18 months old.
I work with families, health care professionals, and multiple rare disease forums, as well as managing Elijah’s Personalised Health Budget, which means that I have a unique perspective as a parent, a postural care advocate, package manager, and founder of a CIC.
I am a leading voice for the importance of 24-hour postural care to prevent body shape distortion in people with limited movement or complex disabilities; a preventative approach can potentially save the NHS tens of thousands of pounds each year, as well as safeguarding lives. In 2015, I hosted Elijah’s First International Conference: The Living University of Postural Care, which brought together postural care experts from across the globe to share best practice. A second conference is planned for later this year.
I am available for public speaking and keynote presentations, as well as to provide expert opinions about Apert Syndrome, postural care and night-time positioning, and Personal Health Budgets to the media. I am a passionate, thought-provoking and engaging speaker who will cast new light on many of the issues above.
Presentation of competencies
Attitude towards adult learners with disabilities
Expectations from adult learners with disabilities
Attitude of other learners
Adult learners with disabilities advocacy
Planning learning and assessment
Recognising prior learning and experience
Adaptative learning provision
Staff expertise on adult learners with disabilities
Continuing Professional Development
Communication with adult learners with disabilities
Informing on the learning provision
Informing on the accessibility of the learning provision
Promoting the learning provision
Sorry, there are no references for this user yet!